Design and implementation of a new data governance model in the age of digital health; PULSAR as a test bed for responsible innovation 01 December 2020 Regular position
This post has expired
Research Assistant
PULSAR is currently developing a data governance model that promotes responsible innovation for the benefit of all of its stakeholders. The project will draw on the know-how of Open North, a non-profit organization with unique expertise in issues of governance and data management for the common good.
Adequate regulation of data collection and protection of rights (such as the right to privacy) are major challenges facing institutions and governments around the world, in various fields such as smart cities or healthcare.
These challenges are part of the more general framework of data governance, which affects both models (such as trusts) and policies related to data management (quality, consent to data collection). The implementation of data governance frameworks remains a challenge, as institutions face technical, organizational and societal issues (e.g. public trust). Specifically, the challenges include: proper management of consent in a context where it can be withdrawn (dynamic consent), effective assessment of information systems and application of protocols in a multi-stakeholder data sharing environment (coordination and risk assessment), and a good understanding of the risks, rights and potential use cases on the part of those concerned (informed consent).
These challenges are common to many innovation initiatives and often place the effective use of new technologies against the potential harm of data misuse.
collected under relatively broad consent to study sustainable health.
PULSAR is the first research network dedicated to sustainable health research. Implemented by Université Laval and Alliance santé Québec, PULSAR is a collaborative space for research and innovation. Both virtual and real, the PULSAR space brings together actors from all walks of life who see health research differently. The sharing of data between patients and researchers and the valorization of this data are key elements of the PULSAR initiative.
PULSAR is currently developing a data governance model promoting responsible innovation for the benefit of all its stakeholders (citizens, researchers, participants and decision-makers).
This project consists in
- identifying models and mechanisms of data governance compatible with the PULSAR open science philosophy;
- measuring the acceptability of these models and mechanisms with all stakeholders;
- developing and implementing a data governance model adapted to the PULSAR ecosystem.
The project will draw on the know-how of Open North, a non-profit organization with unique expertise in issues of governance and data management for the common good.
We are looking to fill a Research Assistant position to support this project. The Research Assistant will be integrated into Open North’s applied research team, while working under the supervision of one of the researchers involved in the project.
Responsibilities:
- Assist in the coordination of project partners, including planning and attending project meetings and transcribing meeting minutes.
- Conduct research on various aspects of health data governance, including data management, technical architecture, research ethics and organizational analysis.
- Assist in the preparation and conducting of structured or semi-structured interviews with groups of stakeholders, including researchers and members of the public.
- Participate in the development and presentation of workshops and webinars.
Qualifications:
- Bilingual (an asset)
- Strong ability to summarize information from academic sources and literature and communicate complex ideas
- Good organizational and project management skills
- Master’s level student in fields such as law, administration and management, computer science, philosophy, library science and information science.
- Possibility of adapting the position to the academic interests of the student.
Let’s keep in touch!
Would you like to be informed about IID news and activities? Subscribe now to our monthly newsletter.